Well, Emma was accepted into the outpatient program. She prefers to call it “daytreatment”, likely because it sounds like daycare. I think I’m starting to get the gist of this. Her time here is really more to get a baseline for them to help make the recommendations of what we can try to do at home and at school, as well as what medication shifts to make, etc. It also helps plug us into new therapy options, get testing done, etc. in the end, it will help lead to improvements. But the few weeks here in and of themself are not necessarily miraculous. (I may be wrong. I’m not sure I really know what’s going on.)
I don’t handle waking up at 4:15 very well. And I’m struggling to find resources for myself. My big question to the team here at the NSC was this, “If my daughter is in such a state of crisis that she is here at the NSC, doesn’t it make sense I am in a state of crisis too? If there is a child in HERE, the only reason the parents wouldn’t need mental help too is if they are already receiving it.” They were a little doe-eyed about it. I have a new mission, more about that at a later point in time.
I wish I had more to write about, I am sure you are curious. But it’s just like this… I drive. I check her in. I tell the nurse and check-in lady how her evening and morning were. There may or may not be a parent meeting. I go to the cafeteria, where I zone out and do something until 2:15. This may include talking on the phone, trying to read a book (highly unsuccessful lately). Lots of trying to collaborate future appointments and therapies for Emma, watching some of her assessments, meeting with her team of Drs, working on her new home schedule and point-and-level system, cards for the schedule, etc.
I’ll be honest. I do a LOT of aimless staring out the windows while sitting in a chair. Last week I did hours and hours of mindless Facebooking. I’ve gone off FB for a bit, so, none of that this week. Anyway, I sit and wait for Emma until 230. We drive home. I manage her until she goes to bed, around 7. Then I watch an episode of “House” with Ryan while we eat, I get stuff ready for the morning, and I collapse in bed. Voila.
Oh, the drive sucked last week. Until Sunday night when they cancelled outpatient for Monday due to a stomach bug. Any of you guys know about autism? How do they like change? Ha ha ha! Needless to say, I enjoyed driving to Denver yesterday. (Glass half-full) 😉
I’m on my iPad right now in the cafeteria. Insert photo here:
I can’t really write well sans-keyboard. I’m like Anne Shirley without a proper pen. 😦 I feel old today.