NCU Chapter 2

Well, Emma was accepted into the outpatient program. She prefers to call it “daytreatment”, likely because it sounds like daycare. I think I’m starting to get the gist of this. Her time here is really more to get a baseline for them to help make the recommendations of what we can try to do at home and at school, as well as what medication shifts to make, etc. It also helps plug us into new therapy options, get testing done, etc. in the end, it will help lead to improvements. But the few weeks here in and of themself are not necessarily miraculous. (I may be wrong. I’m not sure I really know what’s going on.)

I don’t handle waking up at 4:15 very well. And I’m struggling to find resources for myself. My big question to the team here at the NSC was this, “If my daughter is in such a state of crisis that she is here at the NSC, doesn’t it make sense I am in a state of crisis too? If there is a child in HERE, the only reason the parents wouldn’t need mental help too is if they are already receiving it.” They were a little doe-eyed about it. I have a new mission, more about that at a later point in time.

I wish I had more to write about, I am sure you are curious. But it’s just like this… I drive. I check her in. I tell the nurse and check-in lady how her evening and morning were. There may or may not be a parent meeting. I go to the cafeteria, where I zone out and do something until 2:15. This may include talking on the phone, trying to read a book (highly unsuccessful lately). Lots of trying to collaborate future appointments and therapies for Emma, watching some of her assessments, meeting with her team of Drs, working on her new home schedule and point-and-level system, cards for the schedule, etc.

I’ll be honest. I do a LOT of aimless staring out the windows while sitting in a chair. Last week I did hours and hours of mindless Facebooking. I’ve gone off FB for a bit, so, none of that this week. Anyway, I sit and wait for Emma until 230. We drive home. I manage her until she goes to bed, around 7. Then I watch an episode of House with Ryan while we eat, I get stuff ready for the morning, and I collapse in bed. Voila.

Oh, the drive sucked last week. Until Sunday night when they cancelled outpatient for Monday due to a stomach bug. Any of you guys know about autism? How do they like change? Ha ha ha! Needless to say, I enjoyed driving to Denver yesterday. (Glass half-full) 😉

I’m on my iPad right now in the cafeteria. Insert photo here:

image

I can’t really write well sans-keyboard. I’m like Anne Shirley without a proper pen. 😦  I feel old today.

Advertisements

3 thoughts on “NCU Chapter 2”

  1. Daleth, It has been a long time since we were last in contact. I had no idea that all of this was going on in your life. My mind is just totally blown away by all that I have been reading. I have a cousin in AZ who has been dealing with very similar instances like yours with her daughter Sophia. I really didn’t understand the situation until I started reading your stories. You sound completely wore out, mentally and physically. Are you staying at the Ronald McDonald house in Colorado Springs? That is an amazing place!!

    I look forward to continue reading your blog as I have been so enlightened. Please contact me and let me know where you are. If there is anything I can do for you, please let me know. Many prayers for Emma and you!!

    Jackie Stephens
    Former Saguache County Assessor

    1. You’re right, I haven’t seen you in forever and a day! Yes, we have had a lot going on. I’m sorry that your cousin has had challenges like ours too, please feel free to pass my blog and/or contact info on here along to her. I feel worn out, and really look forward to feeling less so. 🙂 I’m living in Security, Colorado (SOUTH Colorado Springs). Thank you so much for reaching out! I’m on Facebook, if you are – feel free to find me and ‘friend’ me. ❤

  2. Ever since I had started reading this blogg, I thought it was very interesting and very inspiring because I have lived with autism for about 44 years and diabetes type one for 42 years. I am 46 years old. I realize how tough it is to live with both. Here is something I wanted to share with Emma and you. 22 years ago, I visited a biochemical imbalance clinic: The Pfeiffer Treatment Center/ The Health Research Institute.
    The Health Research Institute helps all sorts of people with ALL kinds of behavioral problems. Their hair sample and blood tests are to determine what minerals and vitamins are needed to balance out the behavioral problems as well as what minerals will aggravate the individual’s behavior. I have been on nutritional therapy for 24 years and the results have been great.
    If you are interested in the Pfeiffer Treatment Center, here is the address and phone numbers:

    Pfeiffer Medical Center\Health Research Institute
    4575 Weaver Parkway
    Warrenville, IL 60555-4039

    (630) 505-0300
    866-504-6076 toll free

    When I read this blog the last couple of times, I was not bothered by what you wrote because I, too, have had issues that were stress related with my autism. I can definitely see what both you and Emma have been through. If that was me, I would be VERY upset too! I am very glad to see you getting this blog going again and wish you and Emma the very best!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s